Tuesday, August 21, 2012

Photosensitivity


Since JDM can be triggered by too much sunlight, these children must be protected from the sun.  As a matter of fact, we think it was our trip to the beach at the end of May that triggered Rachel's.  Poor Rachel loves to play outside, but we have to limit our time out there now.  The hours between 10 am and 4 pm are off limits completely.  And when she goes out, she has to wear long sleeved shirts, long pants, and a big-brimmed hat.  Every morning, as a part of getting dressed, we put sunscreen on her.

Rachel has taken all of this in stride.  I think it helps that she's only two and doesn't realize that what she's doing is different from others.  When I remind her about her hat, she says, "So the sun won't get me."

Apparently, the methotrexate will also make her sensitive to the sun.  But with all of the precautions we're already taking, it won't add anything to that.

1 comment:

  1. She certainly looks like she is taking it all in stride! She's still smiling. :)

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