Tuesday, December 10, 2013
Rachel had her regularly scheduled check up today with her pediatric rheumatologist. How is she doing? Great! Dr. R thinks today was the best she's seen her. She commented that Rachel was so "pasty white" at her previous appointments that she almost looked anemic. But not today. And I replied that we've stopped putting sunscreen on her everyday as we discussed at Rachel's last appointment. So Rachel has a little color to her skin now, healthy color.
We also discussed a couple of concerning issues: Rachel's fingernails and her cataracts. The problem with Rachel having cataracts is that part of her brain may not develop like it should. Part of her brain may not be visually stimulated because she can't see. I'm making it sound more worrisome that it actually is. Dr. R was fine with doing nothing right now and having the ophthalmologist follow up in six months. She agreed with his conservative approach: keeping an eye on it and not doing surgery yet.
Rachel has also been losing fingernails. The odd thing is, well, it's all odd really. There are three fingers on one hand and two on the other that are affected. And there is a nail underneath the one that falls off. Apparently, something happened several months ago that caused her nails to stop growing, and they started growing again under the old ones. It's strange. But it doesn't hurt, and she's not bothered too much, so we've decided not to be too concerned either. And now it looks like this is happening with some of her toenails. I guess, if it's not one thing, it's another.
The good news is that we get to stop giving Rachel her methotrexate subcutaneously! We get to give it to her by mouth. Hooray!! No more shots!! We even did a happy dance right there in the doctor's office!
Good news and bad news. Isn't that how it goes? But it's comforting to know that God is in control, and He hold Rachel securely in His hands. Nothing, absolutely nothing, can happen to her without His express approval.