Wednesday, September 10, 2014

No More Methotrexate!!


Rachel had a doctor's appointment up in Houston this afternoon.  We thought she had weathered our beach vacation without any problems, but it was nice hearing that the doctor thought so, too.  It's funny that we slathered Rachel with sunscreen, and she wore a hat and a rash guard, but she is still our darkest child!

Two years ago when Rachel was diagnosed with her JDM, we were told that she would be on methotrexate for two years, and we have been counting down the time.  This winter, we were able to stop injecting it subcutaneously and start giving it orally which was wonderful.  Giving a shot to your child has to be the second worst part of being a parent, second only to holding your child down for blood work.  Anyway, it's been two years now, and we get to discontinue it!  Hooray!  Now Rachel is just on one medication, Plaquenil which we plan to continue for another six months.

Dr. R wants to draw blood in about six weeks to make sure she's still doing well off the methotrexate.  And we'll see her again in six months when we'll hopefully discontinue the Plaquenil.  I think the plan then is to see Dr. R again in six months or a year and then stop.

Stop?  Yes, stop!  With Rachel doing so well, it looks like our visits to the pediatric rheumatologist are coming to an end!  Hooray!  Praise the Lord!!

Wednesday, May 14, 2014

Miraculous Healing...Well, Not Exactly


Rachel had an ophthalmologist appointment this morning, and we got some amazing news!  Do you remember her steroid-induced cataracts?  The ones that Dr. G said might get a little smaller but would not go away, and for which she would probably need surgery at some point?

Well, they're still there, but the word Dr. G used to describe them was "minuscule."  MINISCULE!!  He said they are no problem anymore and not to worry about them at all.  Whoohoo!  Dr. G did say that he has seen cataracts decrease like this in children occasionally, but he was still a little surprised.

We hadn't noticed any problems with Rachel's vision, but we also realized that that didn't necessarily mean anything.  We are so happy!

Praise God from Whom all blessings flow!

Tuesday, April 15, 2014

Better and Better!


Rachel had another encouraging appointment today.  According to Dr. R, she looks great (we already knew that!) and is doing great.  Everything is just about as good as it can be.  Basically, if you didn't already know that Rachel has JDM, there is no way to look at her and see it.  Hooray!

Dr. R cleared her to do just about anything, even a trip to the beach.  Of course, there are caveats:  lots of sunscreen and other common sense things to protect her from the sun.

The other good news is that we can start tapering Rachel's methotrexate dose.  As you may recall from her last appointment, we've been able to give it orally instead of subcutaneously, and now we can give a little bit less.  Assuming that Rachel continues to do as well as she has been, we can continue the taper until August when we can stop giving it.  Double hooray!

Once again, we give God all of the glory for how well Rachel is doing.  Without His hand on her, well, we don't want to think about it.